Papers

Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together

June 2023

The Clinical Application of Gene Editing: Ethical and Social Issues

July 2019

Evaluating the Risks and Benefits of Genetic and Pharmacologic Interventions for Down syndrome: Views of Parents

January 2020

Gene Modification Therapies: Views of Parents of People with Down syndrome

February 2019

Attitudes of People with Inherited Retinal Conditions Toward Gene Editing Technology

June 2019

Attitudes Toward Hypothetical Uses of Gene-Editing Technologies in Parents of People with Autosomal Aneuploidies

October 2019

ISSCR Guidelines for Stem Cell Research and Clinical Translation: The 2021 Update

June 2021

Human Gene Editing: Revisiting Canadian Policy

January 2017

Regulating Preimplantation Genetic Testing across the World: A Comparison of International Policy and Ethical Perspectives

May 2020

The Human Embryo: Ethical and Legal Aspects

January 2009

Policy Recommendations for Addressing Privacy Challenges Associated with Cell-Based Research and Interventions

February 2014

Grounded in Reality: Integrating Community Values and Priorities of End Users in Human Gene Editing

August 2024

Building Better Medicine: Translational Justice and the Quest for Equity in US Healthcare

February 2025